this post will be short. the side effects of the 50mg 4 week cycle of sutent tends to sneak up on you. the first week or so into the cycle is not so bad, after that, the side effects start to build up. you have good days and bad days...bad days include extreme fatigue or not being able to stay out of the bathroom and having to force yourself to go do something cuz you know it is good for you to get moving...even if it is just to the store for a quick outing. good days include less time in the bathroom and enough energy to feel almost normal again. today was one of the bad days and im barely in the middle of week 2.
i do have to admit tho, i have been lucky. i have read multiple other accounts from patients on sutent that have more and worse side effects than i do. if the nausea, diarrhea, sensitive fingertips, pealing tongue, sensitive mouth, white hair, weight loss, yellow skin, highlighter yellow pee...all of the side effects i am experiencing are the price i have to pay for my "miracle drug" to work...bring it baby. i can take it! i may be a whiny baby for a couple weeks during the full 6 week cycle, but if its working, its worth it. PLEASE let it be working! December 27th...the date of my next scan to see if there has been any change...please, please, please be working.
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This WILL work!!! It HAS to Bear! i have a good feeling about it :-) wondertart
beanie girl – i hope we'll hear good progress from you on dec 27th, keeping you in thoughts for sure. thank you for sharing your story with others... it's hard to read, but good to know. keep writing. - b-kty
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