Whatchu talkin bout Willis?!

so, in my search for people like me out there...30 somethings that have been diagnosed with kidney cancer, the pickin's are slim. many personal blogs are about random drama in people's lives that few other people in this world give a rat's a$$ about...this one will probably be no different. although the main subject will be my cancer, i'm sure i will go off on random tangents about anything from mixed emotions to who cut me off on the highway today. im not an english major...i wont capitalize or punctuate correctly, i will change tenses and i will speak like a g33k from time to time. basically i will be me...because i can hide behind my computer screen and its great!

ps...i will also jump around...my mind is all over the place all the time...

Sunday, December 21, 2008

Christmas here i come!

follow up appt. went just dandy. dr. doom is glad to see my weight down. i'm not. i'm actually feeling a little like a skeleton, but i guess if i was too skinny the doc would do something about it. steady as i go again with this appt. the only thing was that i was low on magnesium again and had to go to the infusion center the next day to get a 3hour IV drip of magnesium and i am now on a daily dose of magnesium since my body seems to not be able to retain that mineral while on the sutent. many of you are wondering what magnesium does for you....a lot of people have asked me so i figured many more might be curious. well, the dr. told me that it helps your body function better and helps you process the nutrients in your food more effectively. will it help me with the fatigue? many have asked that as well....the answer is that i'm not sure. it would seem that in a round about way it should help with the fatigue since it will be helping my body get more out of what i am able to eat and keep down. hopefully that will be the case.

that's about it for now. i have felt like i might be coming down with something over the past couple days, but i can't tell if it is just from the magnesium boost or if my body is trying to fight something off. needless to say i have been resting a lot and being a big baby because i don't want to be sick for christmas. so team beansaver, cross everything once again for me that i will get over whatever is ailing me and that i will be well for christmas day! i hope you all have a wonderful holiday and an amazing new year!

Thursday, December 18, 2008

Christmas Overkill??

Many of you have requested to see the Griswald-isk set up across the street. well, attached are a couple pictures. i couldn't fit all of the lights in one frame for he full effect....need a panoramic setting and i don't have that on my camera. Plus, it was all i could to do bring myself to stand out there and play with the settings to get what i was able to get. for some reason the same settings i used to take pictures of my house didn't work with theirs.

anyway, notice how tall the snowman is compared to the car in the driveway. and oh yeah, the deer are the kind that move their heads.

The Snowman

Santa and Rudolph go round and round

Deer on the lookout!
on a side note, i can't even keep my lights lit...the top strand, yes the top one, not the bottom or the middle, but the very top strand of lights on my tree went out this morning. that's gonna be fun to try and find which evil bulb is at fault for that little dose of christmas joy. i love the holidays!

merry christmas and happy holidays team beansaver! time to get ready for my check up appt.

Friday, December 12, 2008

caught up in christmas cheer....sort of.

sorry its taken me so long to update the thanksgiving week from hell. well, i went in for my IV infusion of magnesium and that went fine. then i went to be drained and that went as it usually does. the PA didn't get me with the first poke and had to do it again and deeper like i told her in the first place. i understand why these people don't want to listen to me, the patient....it makes it seem like im telling them how to do their job. im really not. im a good patient most of the time. i put on my big girl pants and deal, but i know my body better than anybody AND i have been drained several times now and have actually had one of the PA's tell me to tell the next one details about me to make it go more smoothly. to just go in on the left, no matter what the right side shows on the ultrasound. i need 2 shots of lidocane and they have to go deep...farther than they think before the fluid will start coming out. see, there is a lot of scar tissue built up on that side, which is why they have to go in deeper than they think. they tell me every time that there is scar tissue there from them poking me....i try to explain that i have only been poked 4 or 5 times in a year and that i have a whole lotta mess going on on the left side that has nothing to do with a little poke in the side.

anyhoo, once that was all over i was finally able to relax and try to have a nice thanksgiving. BUT, and there always seems to be a but doesn't there....i was in a lot of pain. really sore from being drained this time. so, i wasn't able to do a whole lot the rest of the week. i did manage to help with some of the cooking, but not much. i was able to eat tho...and that was the main goal. to feed my skinny ass!

so, beginning of the week, not so good, but by the end of the week i was doing pretty well. now i am completely caught up in the race to christmas. shopping, wrapping, decorating....uggg....who's idea was it to do all this work for one day? it's like "keeping up with the jones'" on my street. one house puts up some lights...then the next house puts some up....then the first house puts up more. its insane. i actually went out and bought one of those lit animals. its a polar bear playing with a red ball that lights up and moves back and forth. it in no way competes with the people across the street from me. OH NO....they have a 7ft. blow up snowman that stares at my house all day/night long AND a 6ft. blow up snow globe in addition to the lights on their house. look out clark griswald....you've got competition. i think i actually heard a plane that was coming into charlotte-douglas change course because they thought the griswald wanna-bees house across the street was the beginning of the runway.

oh well, it's all good fun and holiday cheer right?! go in debt shopping for decorations and presents and get half a dozen paper cuts wrapping. but, it's all worth it for one day of glory where the retail therapy has paid off as you watch everyone open their presents.

oh, i do have a regular follow up appointment this thurs. 12/18. its just the 3wk routine visit, but i will try to get a quick update/post on here after that appointment to let everyone know how it went before the holidays.