Whatchu talkin bout Willis?!

so, in my search for people like me out there...30 somethings that have been diagnosed with kidney cancer, the pickin's are slim. many personal blogs are about random drama in people's lives that few other people in this world give a rat's a$$ about...this one will probably be no different. although the main subject will be my cancer, i'm sure i will go off on random tangents about anything from mixed emotions to who cut me off on the highway today. im not an english major...i wont capitalize or punctuate correctly, i will change tenses and i will speak like a g33k from time to time. basically i will be me...because i can hide behind my computer screen and its great!

ps...i will also jump around...my mind is all over the place all the time...

Monday, June 23, 2008

To quote "The Rock" .... i think he said it...

ok, so i was doing great for the first 3 weeks or so, then the side effects LAYITH THE SMACKITH DOWN! i think The Rock said that....i know he said "Know your role....and shut your damn mouth" but that didn't really work (lisa, help me out here). anyway, i have been so tired and my mouth is Uber sensitive during this last week....thank goodness that my last pill is tonight and the side effects can start to subside. ketchup even freaking hurts to eat. :( put a fork in me cuz i am done with this cycle. uggggg.

3 week check....NO FLUID, YIPPIE!!!

so, i had my standard 3 week check last week and everything is fine. i was a little tired at that point and my mouth was starting to get sensitive, but the good news was that the fluid had gone down in my belly. my dr. was excited about that. he said "now, i don't get excited much, but i am excited about this!" haha....if he hadn't said he was excited, you wouldnt have known it. ha!

anyway, just a quick update on the 3 week check and everything is fine....OH, we did decide to do another cycle after this one but to go back up to 50mg....my usual dose. Then at the end of that cycle, we will scan again. fun fun....

Friday, June 6, 2008

You look Maaaarvvolousss!!!!

shout out to billy crystal!

ok, so i lost a bunch of weight during my recovery....well, about 20lbs, so not a BUNCH. but, my body has changed a lot because i lost both fat and muscle. (and a cantaloupe sized ovary which i never found out how much that sucker weighed). anyway, i look like i've been on a great diet, not like i have been to hell and back. the one bad thing about it is that i have lost all padding....and i mean ALL padding in my ass. not like i had much of an ass to begin with....i had a flat butt, but i at least had some sort of butt. now, i have nothing and it hurts like hell to sit for very long because my tail bone...bottom of my backbone bone... jams into the seat. it feels like i am a freak of nature and have grown a tail. needless to say, my workout plan is focused on building up a butt...simply for comfort! the best way i can describe it is if you were sitting on your elbow...yeah, that about sums it up. try putting the majority of your weight on your elbow and see how long you can stand it.........not too comfy.

the only fun part is that now i need all new clothes. w00t! can we say shopping spree!!! build up my stamina by shopping for cute and fun summer clothes. can't beat that. i went shopping the other day and got 2 pairs of shorts, 2 shirts, 2 skirts, 2 summer dresses and 3 pairs of cute jeans to replace the ones that i already have that i LOVE but are too big now. it was a great start....oh, and a new pair of Coach shoes...cuz...well...just cuz. :-)

all in all i have lost a total of 40lbs since i was diagnosed....due to the sutent side effects and the surgery and recovery. luckily i had some meat on me to lose so i don't look like a skeleton. but, that is why i needed all new summer clothes...because they weren't just a size too big, they were 3 to 4 sizes too big. as far as the winter clothes, they are only 1 or 2 sizes off.

i am still eating like a pig....the steroids really make me hungry. as i have mentioned, it feels wonderful to be able to eat...and eat a LOT. i am not gaining anything back tho....im sure that will change, but right now im fine with it....i havent been this size since high school!

Monday, June 2, 2008

The Magical Amount....

The magical amount.....but not enough to hurt you.....the magical amount....its just enough to work!!!

okay, so i stole the tune(along with half of the words) from one of those "Truth" commercials with the dancing cartoon horses.....anyway, my point is that the Sutent seems to be working. My belly is going down daily and i am NOT going to have to go in to be the human pincushion! w00t! w00t! it feels great to be reclaiming my body damnit! poor thing has been to hell and back and it is finally doing what i want it to do!

so, short post, but full of good news! Sutent still works....dont know how well it works, but it's still doing something amazing in there...and i've only been on it for 6 days. THANK YOU MIRACLE DRUG.

oh, on another front....i went out with a friend last night for the first time in 2.5 months...it felt wonderful....my life is slowly getting back to normal....its about damn time! I even helped bathe a horse yesterday...come on stamina...building...building....building.... :)