Whatchu talkin bout Willis?!

so, in my search for people like me out there...30 somethings that have been diagnosed with kidney cancer, the pickin's are slim. many personal blogs are about random drama in people's lives that few other people in this world give a rat's a$$ about...this one will probably be no different. although the main subject will be my cancer, i'm sure i will go off on random tangents about anything from mixed emotions to who cut me off on the highway today. im not an english major...i wont capitalize or punctuate correctly, i will change tenses and i will speak like a g33k from time to time. basically i will be me...because i can hide behind my computer screen and its great!

ps...i will also jump around...my mind is all over the place all the time...

Tuesday, November 25, 2008

Happy Freaking Thanksgiving...

well, once again, just having a smooth holiday is not in the cards for beansaver. i had my 3 month scan on monday and my follow up appt. tues. (today). my scan showed that the lesions on my liver were pretty much gone...well, they at least weren't showing up on the scan now, but i have so much fluid built up that it was hard to tell what was going on everywhere else in my torso. the other thing that we could tell definitely was that i have built up more fluid behind my left lung...not IN my lung, but behind it so that is putting pressure on my lungs and the fluid that is elsewhere in my torso/belly is putting pressure on everything else. soooooo, we decided to make an appointment for me to be drained tomorrow (wed.) the day before Thanksgiving. ok..fine...no problem, unstuff me the day before i want to stuff my face with turkey. well, then they took my blood and ran my labs the way they always do every 3 weeks. last time my potassium and calcium and electrolytes were down. this time they were all fine, but my magnesium was down. so, they had to call in a last minute prescription for me to take 3 magnesium pills tonight and then i have to go in to the infusion unit tomorrow at 10:30 to get an IV dose of magnesium before my appointment to be drained at 1:30. i also have to have blood drawn again before i go to be poked and drained. :( another full day at the doctors/hospital. all of that is after today when i had to be poked twice already to get my labs drawn because the chick blew my vein the first time. wawawa.

i should be happy about my scan. i should be thankful that the cancer is not growing like crazy since that is typically what this type of RCC does. it is very aggressive and fast growing, so the fact that it did not get any bigger for this scan is progress. i, however, am a perfectionist and want to excel at everything and had gotten used to receiving great news with every scan. i got used to "exceeding expectations" and being my drs. favorite case, the topic of conversation during the Monday conferences with all the other doctors. the almost unheard of "50% reduction" being the norm for me....that's what i wanted to hear again!!! yes i am spoiled. i admit it. this time, i will have to settle for the "holding steady with slight progress". the most frustrating thing is that there isn't anything i can do to change it. i can't make the meds work better. i can't make the cancer die faster. i can't make the fluid stop building. i am at the mercy of my body and chemicals and drugs that i can barely pronounce.

at the very least, i will have a belly that is drained of fluid so that i can fill it up with yummy Thanksgiving treats with my family. yeah to being able to eat more than a cup of anything at a time...more room in the tummy means more turkey and all the fixin's for me! yippie!

so, thanks for all your thoughts and prayers team beansaver....have a Happy Freaking Thanksgiving.

3 comments:

Anonymous said...

Girllll, I can not express to you how proud I am of you in being such a trooper through all of this and still seeing the bright side of everything! You are so freaking amazing! I have total faith your chemical cocktails will eventually work and bring destruction to Lefty! I wonder if Lefty sees google eyes on him whenever that sutent blasts him again and again? :-) You enjoy your Thanksgiving Bear! Have no mercy on that turkey carcass - grab a leg and a wing for me too!

Love you lots! Talk soon!

Wondertart

Anonymous said...

LoL "google eyes" ^

Hooray for progress!! You still are a "cancer killin machine."

Inspector #12

Anonymous said...

Progress is good. You're doing great! Google eyes are funny. Wuv Woo!

Aunt Deb